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Amyotrophic lateral sclerosis imposes profound fatigue and mobility limits that shape willingness to join clinical research . Interviews illuminated how energy conservation, travel burden, invasive procedures, and altruism interact. Key finding: participant...
In amyotrophic lateral sclerosis, participation hinges on the mechanism of energy conservation versus participant burden. Key finding: individuals favor short, low-burden procedures , flexible scheduling, remote and home-based options, and transparent recip...
Amyotrophic lateral sclerosis limits energy and mobility, making traditional trial operations taxing. Participants value altruism but resist avoidable burden. The key finding: reduce travel, compress or replace in-person visits, and enable remote or at-home...